How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
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Michelle Chadwick
Mar 192 min read
Living with IH Global Support Groups
Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...
Michelle Chadwick
Mar 72 min read
IHAW - Ways to Participate
The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...
Michelle Chadwick
Mar 51 min read
New date and collaboration for the IH Awareness Week
The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....
Michelle Chadwick
Mar 42 min read
Living with IH - Share Your Experience Project
Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...
Michelle Chadwick
Mar 13 min read
Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...
Michelle Chadwick
Feb 273 min read
RARE DISEASE DAY
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...
Michelle Chadwick
Feb 223 min read
New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia
By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...
Michelle Chadwick
Jan 22 min read
Life after Diagnosis - Live your best life.
'LIFE AFTER DIAGNOSIS - Insights into how to live your best life' is a 3 part presentation and discussion on ‘Improving overall health...
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Illuminate Hypersomnia
Announcing the Illuminate Hypersomnia initiative, bringing together members of the global Idiopathic Hypersomnia community.
Diagnosis to Aftercare
Practical advice for treating doctors of patients with Narcolepsy & Idiopathic Hypersomnia emphasising patient support and medication...
Frequently Asked Questions
To avoid going over the same topic in our Living with IH Community catch ups please go over these FAQ prior to attending your first...
Multiple Sleep Latency Test (MSLT) - What it does and doesn't tell a sleep physician.
The multiple sleep latency test (MSLT) tests for excessive daytime sleepiness by measuring how quickly you fall asleep in a quiet...
Idiopathic Hypersomnia causes more than just sleepiness
The main symptom of Idiopathic Hypersomnia (IH) is an overwhelming need for excessive sleep. Despite adequate and often extraordinary...
Idiopathic Hypersomnia has come a long way, and so have I
Michelle Chadwick is the founder of Hypersomnolence Australia (HA), the world’s first not for profit organisation to be dedicated to...
Idiopathic Hypersomnia is a neglected disorder
During her presentation at SLEEP 2022, Isabelle Arnulf, MD, PhD, senior neurologist and professor of neurology at the Pierre and Marie...
Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication
On Wednesday 6th Sept at 7.30pm we will be holding a joint Living with IH and Living with Narcolepsy Catch up. There will be a special...
Catch up on the latest NEWS - July 2023
Catch up on Idiopathic Hypersomnia & Narcolepsy NEWS - includes all the latest in AUSTRALIAN RESEARCH NEWS!
Research Update: Orexin agonists for Narcolepsy and Idiopathic Hypersomnia
From Dr Julia Chapman PhD, Post-doctoral Research Fellow, Woolcock Institute of Medical Research Orexin is a tiny molecule close to the...
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