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Nov 226 min read

Sleep DownUnder 2024 - Update

Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...

Michelle Chadwick

May 2117 min read

How can I improve my quality of life?

Idiopathic Hypersomnia - How can I improve my quality of life?

Michelle Chadwick

Mar 192 min read

Living with IH Global Support Groups

Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...

Michelle Chadwick

Mar 72 min read

IHAW - Ways to Participate

The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...

New date and collaboration for the IH Awareness Week

Michelle Chadwick

Mar 51 min read

New date and collaboration for the IH Awareness Week

The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....

Living with IH - Share Your Experience Project

Michelle Chadwick

Mar 42 min read

Living with IH - Share Your Experience Project

Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

Michelle Chadwick

Mar 13 min read

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...

Michelle Chadwick

Feb 273 min read

RARE DISEASE DAY

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

Michelle Chadwick

Feb 223 min read

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...

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ALL POSTS

Where did the name Idiopathic Hypersomnia come from?

Every year on what would be his birthday, March 23rd, we honour a man who dedicated his life to medicine and science. Prof Bedrich Roth...

Dr Hugh Mestitz is retiring what now?!

There has been some concern about Dr Hugh Mestitz's imminent retirement. For those that don't know Dr Mestitz has treated people with...

House of Representatives standing committee report on sleep health.

On 23 November I wrote a post Inquiry into Sleep Health Awareness in Australia that announced that the House of Representatives Standing...

Idiopathic Hypersomnia - A Comprehensive Review

This is a comprehensive review of how we have gone from the identification of Idiopathic Hypersomnia to where we are now. Drawn from 56...

Sleep Health in Patients with Sleep Disorders Survey Feedback

We conducted an online survey, "Sleep Health in Patients with Sleep Disorders". The aim of the survey was to get a snapshot of the sleep...

What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias

Dr. David Rye’s 2013 session at the Narcolepsy Network conference entitled: What’s in a Name? Understanding the Origins of the...

Bedřich Roth, His Life’s Work and the 35th anniversary of the book “Narcolepsy and Hypersomnia”

*First published September 2015 I would like to take this opportunity during Idiopathic Hypersomnia Awareness Week 2015 to acknowledge...

Interview with Prof. Michel Billiard for the 8th European Narcolepsy Day 2017

Over the past four decades, Prof. Michel Billiard has published numerous articles on narcolepsy with cataplexy and other hypersomnias of...

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