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Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.
Michelle Chadwick
Mar 173 min read
Call to action - Support for funding for a CDH Patient Registry
Attention Australians Living with Central Disorders of Hypersomnolence (CDH) ie: Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndro
Michelle Chadwick
Feb 62 min read
Sleep DownUnder 2024 - Update
Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...
Michelle Chadwick
Nov 22, 20246 min read
How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
Michelle Chadwick
May 21, 202417 min read
Living with IH Global Support Groups
Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...
Michelle Chadwick
Mar 19, 20242 min read
IHAW - Ways to Participate
The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...
Michelle Chadwick
Mar 7, 20242 min read
New date and collaboration for the IH Awareness Week
The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....
Michelle Chadwick
Mar 5, 20241 min read
Living with IH - Share Your Experience Project
Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...
Michelle Chadwick
Mar 4, 20242 min read
RARE DISEASE DAY
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...
Michelle Chadwick
Feb 27, 20243 min read
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What can you do to help raise awareness?
Worldwide Idiopathic Hypersomnia Awareness Week. Find some easy ways that you can help raise awareness.
Thank you!
The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and...
Is there an Idiopathic Hypersomnia Awareness Week® T-Shirt?
Interested in Idiopathic Hypersomnia Awareness Week® merchandise? We have a Zazzle store! We created a Zazzle store because people ask us...
Study suggests possible trait unique to Idiopathic Hypersomnia
Update in this research below. Idiopathic hypersomnia (IH) is a poorly understood disorder, characterised by excessive sleep and daytime...
Thoughts and stories by people living with Idiopathic Hypersomnia
Understanding how a chronic illness affects someone is difficult for anyone that doesn't experience it so for the 2018 Idiopathic...
Idiopathic Hypersomnia Awareness Week® Media Release
MEDIA RELEASE For immediate release 1 August 2018 6th annual international Idiopathic Hypersomnia Awareness Week® runs from 3th through...
Idiopathic Hypersomnia Awareness Week® 2018 Ambassadors
We are pleased to introduce the 2018 Idiopathic Hypersomnia Awareness Week® Ambassadors. We are fortunate to again have representatives...
We feel bad enough about what we can’t achieve and what we miss out on.
I bet every single person with Idiopathic Hypersomnia can relate to this “But what you don’t know is that I pass on many experiences and...
Idiopathic Hypersomnia - A Comprehensive Review
This is a comprehensive review of how we have gone from the identification of Idiopathic Hypersomnia to where we are now. Drawn from 56...
What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias
Dr. David Rye’s 2013 session at the Narcolepsy Network conference entitled: What’s in a Name? Understanding the Origins of the...
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