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FEATURED POSTS

Nov 226 min read

Sleep DownUnder 2024 - Update

Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...

Michelle Chadwick

May 2117 min read

How can I improve my quality of life?

Idiopathic Hypersomnia - How can I improve my quality of life?

Michelle Chadwick

Mar 192 min read

Living with IH Global Support Groups

Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...

Michelle Chadwick

Mar 72 min read

IHAW - Ways to Participate

The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...

New date and collaboration for the IH Awareness Week

Michelle Chadwick

Mar 51 min read

New date and collaboration for the IH Awareness Week

The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....

Living with IH - Share Your Experience Project

Michelle Chadwick

Mar 42 min read

Living with IH - Share Your Experience Project

Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

Michelle Chadwick

Mar 13 min read

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...

Michelle Chadwick

Feb 273 min read

RARE DISEASE DAY

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

Michelle Chadwick

Feb 223 min read

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...

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ALL POSTS

Idiopathic Hypersomnia Factsheet

THIS POST IS UPDATED WHENEVER OUR FACTSHEET IS UPDATED ie: the copy at the bottom of this post is our most current factsheet. Have you or...

What can you do to help raise awareness?

Worldwide Idiopathic Hypersomnia Awareness Week. Find some easy ways that you can help raise awareness.

Where did the name Idiopathic Hypersomnia come from?

Every year on what would be his birthday, March 23rd, we honour a man who dedicated his life to medicine and science. Prof Bedrich Roth...

Dr Hugh Mestitz is retiring what now?!

There has been some concern about Dr Hugh Mestitz's imminent retirement. For those that don't know Dr Mestitz has treated people with...

House of Representatives standing committee report on sleep health.

On 23 November I wrote a post Inquiry into Sleep Health Awareness in Australia that announced that the House of Representatives Standing...

Rare Disease Day 2019

Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better

Dr Rye HF Conference 2018

On the 6 October we shared a video on our social media of Dr. David Rye’s presentation at the 2018 Hypersomnia Foundation Conference. If...

Thank you!

The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and...

Is there an Idiopathic Hypersomnia Awareness Week® T-Shirt?

Interested in Idiopathic Hypersomnia Awareness Week® merchandise? We have a Zazzle store! We created a Zazzle store because people ask us...

Study suggests possible trait unique to Idiopathic Hypersomnia

Update in this research below. Idiopathic hypersomnia (IH) is a poorly understood disorder, characterised by excessive sleep and daytime...

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