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Nov 226 min read

Sleep DownUnder 2024 - Update

Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...

Michelle Chadwick

May 2117 min read

How can I improve my quality of life?

Idiopathic Hypersomnia - How can I improve my quality of life?

Michelle Chadwick

Mar 192 min read

Living with IH Global Support Groups

Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...

Michelle Chadwick

Mar 72 min read

IHAW - Ways to Participate

The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...

New date and collaboration for the IH Awareness Week

Michelle Chadwick

Mar 51 min read

New date and collaboration for the IH Awareness Week

The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....

Living with IH - Share Your Experience Project

Michelle Chadwick

Mar 42 min read

Living with IH - Share Your Experience Project

Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

Michelle Chadwick

Mar 13 min read

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...

Michelle Chadwick

Feb 273 min read

RARE DISEASE DAY

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

Michelle Chadwick

Feb 223 min read

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...

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ALL POSTS

Sleep DownUnder 2024 - Update

Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...

Catch up on the latest NEWS - November 2023

Idiopathic Hypersomnia causes more than just sleepiness

The main symptom of Idiopathic Hypersomnia (IH) is an overwhelming need for excessive sleep. Despite adequate and often extraordinary...

Idiopathic Hypersomnia is a neglected disorder

During her presentation at SLEEP 2022, Isabelle Arnulf, MD, PhD, senior neurologist and professor of neurology at the Pierre and Marie...

Catch up on the latest NEWS - July 2023

Catch up on Idiopathic Hypersomnia & Narcolepsy NEWS - includes all the latest in AUSTRALIAN RESEARCH NEWS!

Research Update: Orexin agonists for Narcolepsy and Idiopathic Hypersomnia

From Dr Julia Chapman PhD, Post-doctoral Research Fellow, Woolcock Institute of Medical Research Orexin is a tiny molecule close to the...

Advocacy & Awareness Registry

We invite you to join our Central Disorders of Hypersomnolence (CDH) Advocacy and Awareness Registry. The registry is a unique resource...

Bedrich Roth: Pioneer in Sleep Medicine

I'm a published author in a medical journal! From a personal stand point, as someone living with IH, I'm proud of that but I also feel a...

Dr Rye HF Conference 2018

On the 6 October we shared a video on our social media of Dr. David Rye’s presentation at the 2018 Hypersomnia Foundation Conference. If...

Complete Idiopathic Hypersomnia is an independent sleep disorder

The terms "with long sleep" and "without long sleep" never did adequately describe the two forms of Idiopathic Hypersomnia. However did...

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