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FEATURED POSTS

Nov 226 min read

Sleep DownUnder 2024 - Update

Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...

Michelle Chadwick

May 2117 min read

How can I improve my quality of life?

Idiopathic Hypersomnia - How can I improve my quality of life?

Michelle Chadwick

Mar 192 min read

Living with IH Global Support Groups

Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...

Michelle Chadwick

Mar 72 min read

IHAW - Ways to Participate

The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...

New date and collaboration for the IH Awareness Week

Michelle Chadwick

Mar 51 min read

New date and collaboration for the IH Awareness Week

The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....

Living with IH - Share Your Experience Project

Michelle Chadwick

Mar 42 min read

Living with IH - Share Your Experience Project

Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

Michelle Chadwick

Mar 13 min read

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...

Michelle Chadwick

Feb 273 min read

RARE DISEASE DAY

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

Michelle Chadwick

Feb 223 min read

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...

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ALL POSTS

Idiopathic Hypersomnia - A Comprehensive Review

This is a comprehensive review of how we have gone from the identification of Idiopathic Hypersomnia to where we are now. Drawn from 56...

Rare Disease Day 2018

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. 28 February 2018 marks the tenth...

Sleep Health in Patients with Sleep Disorders Survey Feedback

We conducted an online survey, "Sleep Health in Patients with Sleep Disorders". The aim of the survey was to get a snapshot of the sleep...

What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias

Dr. David Rye’s 2013 session at the Narcolepsy Network conference entitled: What’s in a Name? Understanding the Origins of the...

Bedřich Roth, His Life’s Work and the 35th anniversary of the book “Narcolepsy and Hypersomnia”

*First published September 2015 I would like to take this opportunity during Idiopathic Hypersomnia Awareness Week 2015 to acknowledge...

Idiopathic Hypersomnia Awareness Week on ABC Radio

The founder of Hypersomnolence Australia and Idiopathic Hypersomnia Awareness Week, Michelle Chadwick was interviewed live on ABC Radio...

Thank you for caring for someone with Idiopathic Hypersomnia

There is no cure for Idiopathic Hypersomnia and the medications that are used only partly help to manage symptoms. For many people,...

Correct Terminology Matters

The terms 'hypersomnia of unknown origin' and 'excessive daytime sleepiness' are not synonymous with idiopathic hypersomnia (they do not...

Research is important for rare diseases

The theme for this year’s Idiopathic Hypersomnia Awareness Week is “Research”. We share the theme of “Research” with this year’s Rare...

Do People With Idiopathic Hypersomnia Really Sleep Longer Than Normal?

One of the biggest frustrations for someone with Idiopathic Hypersomnia is that some people don't believe they actually sleep...

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