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Nov 226 min read

Sleep DownUnder 2024 - Update

Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...

Michelle Chadwick

May 2117 min read

How can I improve my quality of life?

Idiopathic Hypersomnia - How can I improve my quality of life?

Michelle Chadwick

Mar 192 min read

Living with IH Global Support Groups

Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...

Michelle Chadwick

Mar 72 min read

IHAW - Ways to Participate

The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...

New date and collaboration for the IH Awareness Week

Michelle Chadwick

Mar 51 min read

New date and collaboration for the IH Awareness Week

The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....

Living with IH - Share Your Experience Project

Michelle Chadwick

Mar 42 min read

Living with IH - Share Your Experience Project

Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

Michelle Chadwick

Mar 13 min read

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...

Michelle Chadwick

Feb 273 min read

RARE DISEASE DAY

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

Michelle Chadwick

Feb 223 min read

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...

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Research Update: Orexin agonists for Narcolepsy and Idiopathic Hypersomnia

From Dr Julia Chapman PhD, Post-doctoral Research Fellow, Woolcock Institute of Medical Research Orexin is a tiny molecule close to the...

Write to policymakers

Ever considered writing to policymakers eg: your local member, the Federal and State Health Ministers? But don’t know where to start or...

How to access Xyrem (Sodium Oxybate) in Australia

and why is Xyrem not TGA registered (approved) or PBS listed? What is Xyrem? The active substance in Xyrem is Sodium Oxybate, which is a...

Advocacy & Awareness Registry

We invite you to join our Central Disorders of Hypersomnolence (CDH) Advocacy and Awareness Registry. The registry is a unique resource...

Living with Idiopathic Hypersomnia & Living with Narcolepsy Community Groups

Hypersomnolence Australia believes in providing quality support to individuals living with Idiopathic Hypersomnia (IH) and Narcolepsy,...

Idiopathic Hypersomnia Factsheet

THIS POST IS UPDATED WHENEVER OUR FACTSHEET IS UPDATED ie: the copy at the bottom of this post is our most current factsheet. Have you or...

Electrolytes and Dehydration

Reducing carbohydrates in our diet can have a positive impact on our overall health and wellbeing. It can also specifically contribute to...

RESEARCH STUDY - Physical Activity and Hypersomnolence

Can Physical Activity Help Manage Narcolepsy and Idiopathic Hypersomnia? Researchers at the University of Sydney are conducting a...

What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you?

What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you? Find out with Dr Sara Winter

Celebrating 10 years as the world's first not for profit charity for Idiopathic Hypersomnia

Hypersomnolence Australia is celebrating 10 years as a Not for Profit Health Promotion Charity raising awareness, providing support, and...

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